Rare Disease Awareness Month – Foxridge Community Initiative

February is internationally recognized as Rare Disease Awareness Month, a time dedicated to giving visibility to the millions of people and families affected by rare conditions.

As a community, Foxridge stands for solidarity, awareness, and support.

For this reason, we have created a special page where residents can:

• Share information about a rare disease

• Tell their personal story or that of a family member

• Promote awareness initiatives

• Highlight fundraising efforts or trusted organizations

• Help other residents learn about conditions that are often overlooked

Why This Matters

Rare diseases often receive little attention, yet they profoundly impact the lives of those who face them.

Giving space to these voices is a simple but meaningful way to support our neighbors.

How to Participate

If you would like to share a story, highlight a cause, or suggest a fundraising initiative, you can contact us here:

👉askfoxie@foxridgeop.com

Community Guidelines

To ensure a respectful and safe environment, contributions should:

• Be accurate and respectful

• Avoid medical advice

• Include only information you are comfortable sharing publicly

• Provide verified links for fundraising or organizations

Together for Awareness

Every contribution — big or small — helps our community grow in understanding and compassion.

Thank you for being part of this initiative.

Together for Awareness

Every contribution — big or small — helps our community grow in understanding and compassion.

Thank you for being part of this initiative.

FSHD

FSHD (Facioscapulohumeral Muscular Dystrophy) is a genetic muscle disorder that causes progressive weakness of the face, shoulders, and upper body.

Awareness and research are essential to support those living with this condition.

👉 Learn more or donate: www.fshdsociety.org

NORD – National Organization for Rare Disorders

Supports individuals and families affected by thousands of rare diseases through advocacy, research, and patient assistance.
https://rarediseases.org

Global Genes

A global nonprofit empowering rare disease patients through education, advocacy, and community support.
👉 https://globalgenes.org

EURORDIS–Rare Diseases Europe

A European alliance improving the lives of people with rare diseases through awareness and advocacy.
👉 https://www.eurordis.org

MDA – Muscular Dystrophy Association

Funds research and provides support for people with neuromuscular diseases, including many rare conditions.
👉 https://www.mda.org

Cure SMA

Dedicated to supporting families and advancing treatments for Spinal Muscular Atrophy.
👉 https://www.curesma.org

Cystic Fibrosis Foundation

Leading organization for research, care, and support for individuals with cystic fibrosis.
👉 https://www.cff.org

The Marfan Foundation

Supports individuals with Marfan syndrome and related connective tissue disorders.
👉 https://marfan.org

Rare Cancer Alliance

Provides information and support for patients affected by rare cancers.
👉 https://www.rarecancer.org